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Friday, June 1, 2012

Fontan Day 2: June 1st 8:30 pm

Hi everyone ~ thanks for checking on Caden, praying for Caden, and being there supporting us.  This again was a rough day knowing they had to do more surgery, go back through the sternal incision to collect that blood mass, but hopefully now we are on our road to recovery.  He is on a steady dose of morphine and versed which now isn't allowing him to really "feel" his pain; however,  I like that he is off ketamine and his dex drip which again I feel made him sorta crazy, out of sorts, confused etc.  It is a fine balance with these pain meds.  You don't want him so out of it, but yet you don't want to see him in pain. At least these last few hours he seems to be more content, he is opening his eyes (at times), and I actually heard him say "momma".  This might have been prompted by the fact I was trying to pull strings of dried saliva out of his mouth before applying some chapstick to his poor chapped lips which I'm sure he did not like.  Nonetheless, I'm happy I heard him speak a word.  Caden is NOT a fan of the oxygen mask.  He pulls it off along with many of the other things taped to his skin, forehead, and arms. Let's also pray for a decrease of drainage in his tubes.  This will allow nurses to pull the tubes out which is very uncomfortable for Caden.  Let's pray for a comfortable night's sleep with the right combination of medication to take the pain away.  Let's pray for easier breathing.  He is still getting steriods for his throat and is on 7 liters of 100% oxygen. 

As I am typing….sitting by Caden's bedside, he just sat up. Obviously in pain, confused, probably wondering where he is at, and what is wrong with him, but the nurses told him to lay back down.  

One day at a time…….slow recovery to get our boy back home to his brother.  

Love - Melissa and David


12 comments:

  1. Thank you again for taking the time to update all of us! We are thinking of you all constantly! Also, thank you for telling us what we need to pray specifically for! Hope tonight is restful for everyone!
    Love,
    Lori

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  2. Oh poor thing. I will pray for everything you mentioned and then some... rest and strength... hoping for a quiet night and an easy recovery from here on out.
    Love,
    Teri

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  3. Thank you for taking the time to update us!! We are all following and cheering on our little buddy!! Stay strong, Caden!!! Hugs to the whole Smith family!!
    Ms. April

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  4. We love you guys!
    Webers

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  5. Thanks for the updates. It's nice to know what specifically we can pray for. Hang in there. God is still in the prayer answering business!
    Christy Johnson

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  6. Constantly checking your blog reports...from early in the morning until just before bed. Appreciate all the updates. Big job for you to complete all of these messages but you know everyone loves hearing about Caden's progress.
    Continued prayers and best wishes.
    Mike and Melanie

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  7. Thank you so much for updating! I now feel I can go to bed and rest easy that things are on the right path! Love to you all from the Trailside Lane Gang!

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  8. Thank you for updating Caden's blog. We are all checking it to keep up to date. Thanks to my daughter, Jen for calling me at work to keep me updated as I don't have access to this at work. Thanks for letting us know what we need to pray for and of course we are all praying for a speedy recovery so Caden can get back home to his little bro Griffin. Hope Caden has a good nights sleep and you also. Contunued thoughts and prayers and much love to you all.
    Love,
    Dawn

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  9. Wow...just checked in to see how the little guy was recovering. So sorry for all of the pain and discomfort along with the unexpected surgery. Thanks for telling us what to specifically pray for...consider it done!!! Prayers for strength, healing, and SLEEP!

    The Petska's

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  10. Love and well wishes from your friends here in Marion.
    Becky Almaroad...and gang...

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  11. Praying and thinking of you all. Love, Stacy Jenke VanTholen (Cheryl's friend)

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  12. Praying hard for the little guy and his mommy and daddy!!

    Love from the Pusick's

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