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Monday, June 4, 2012

Fontan Day 5: June 4 10:00 AM

Hey all.  Just a quick post to let you know that Caden had a pretty good night.  He was up a couple of times but not in real pain.  He was an active boy before the surgery so I feel he is just getting restless.  I slept next to him most of the night in the recliner.  It wasn't the most comfortable for me but when he said "Daddy, i want to hold your hand" who am i to refuse?!?  I am sure that I was more comfortable than Caden is right now anyway.

Speaking of discomfort, Caden will need to keep the plural drain tubes in one more day.  Melissa and I are fine being conservative with the decision.  This helps take all the fluid out and helps with any developing plural effusions.  Caden O2 sats have been 86 and 87 on room air which is great.  During rounds this morning the Dr's commented that this is really good.  His blood pressure and pulse rate have been a bit high but they are not concerned about it.  The Dr's indicate it is to be expected since they are keeping him dry.

Cadens CVP's that were originally a bit more frequent then the Dr's would like to see have now been controlled through the addition of some potassium intravenously.  Caden has been drinking water and for the first time, he had some actual food today.  Does 3 grapes, a bite of pancake, and a graham cracker count as food?  I believe it does.

Caden has been lethargic and we will work with him to sit up more today and do some reaching exercises (OT orders) to get him more active.  I can imaging that when the chest tubes come out tomorrow he will feel more like moving more. All in all Caden is doing okay and we believe he is on a good positive path.

Thank you for your continued support and all your prayers.  They are working!

A special happy birthday to my mom who is at our house looking after Griffin and turns 39 today.  Thank you mom.  We appreciate you and draw a lot of strength from you and your unwavering faith.

Thanks

DMC&G

11 comments:

  1. Justin and Jodie PusickJune 4, 2012 at 10:52 AM

    Sounds like he's on the road to recovery!! What a little angel he is! Still thinking of you and praying for you all!

    Love the Pusick Family

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  2. Oh thank goodness!!! So glad to hear he is now recovering well. Once those chest tubes come out, he is going to feel SO much better! The docs we have are pretty amazing... seems like they've got all the concerns addressed and have answers for all of them. And those sats??... are you kidding me? That is freakin' awesome!! In 2 months, he is going to feel great! So So thrilled that he is feeling better. I know it's still hard... but you guys are amazing parents and faithful people... there is a special place in heaven for you... sitting in that recliner sleeping with one ear and one eye open waiting to hear any noise or movement from your baby is making God smile. My back hurts just thinking about it and I know how uncomfortable those vinyl chairs are :)
    love to you guys- here's to a good good day! Try and get some rest
    Teri

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  3. Great to hear the good news! We are continuously thinking about you all and sending our love & prayers. Way to go Caden, you are a champ!! xoxoxo ~ Tony, MJ, Kyle & Tyler

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  4. So glad to hear that he is having a good day. We will pray that each day is better than the one before.

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  5. Atta Boy Caden!!!!! His fighting spirit keeps on going!!!! So glad to hear that he has started eating some solid food! When they start eating, that is always a good sign!!! He knows he has that really cool water table at home waiting for him to play with, so he wants to get better quick! ;)
    Happy Birthday to Grandma Sue!! What a great birthday present for her.....her grandson is getting better everyday! I'm sure there is no better present than that!!
    Just think David, one day soon, you'll be able to relax on a nice comfy couch watching Caden play. It's so worth the discomfort to see him get better.
    I am still thinking of you guys constantly. Prayers and positive thoughts continue to be sent around the clock! Love you all! :)
    Chris Schuzer

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  6. What a great day, good news about Caden and Sue's 39th birthday. Happy Birthday, love you best!
    Aunt Ginny

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  7. Awesome to hear guys!! I have my Grandma praying to her novena (cathlic thing) for you all too:)

    We're thinking and praying for you all every day.
    Love,
    The Hawkins

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  8. Loving this string of positive posts. I can only imagine how uncomfortable Caden is, but I am thrilled that he is improving. Before you know it, you will ask yourself if he will ever sit still!

    I usually read your posts while holding Parker. I point out the pictures of Caden and he now waves at Caden. "Are you saying hello to Caden" I ask. He nods and smiles every time.

    Hoping for another good day today and for many more great days to follow!

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  9. Sounds like positive news! Keep it up Caden...you are awesome! Hats off to your amazing parents and their unending love for you! Prayers will continue for healing!
    Love,
    Lori

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  10. Wonderful news! Three cheers for the terrific hospital staff.
    Mike and Melanie

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  11. Quietly checking on with the Smiths every day via the blog. Your BP "friends & family" are thrilled to hear the progress! Thanks for keeping us updated. This is what the power of prayer, faith, and courage does for us! God bless your doctors & nursing staff as they continue to monitor and provide good judgment that gets your little "snow man" home - godspeed.

    Happy birthday Grandma Sue! We already know your birthday wish...!

    Big hugs to all,
    Linda D. & BP

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