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Tuesday, June 5, 2012

Fontan Day 6: June 5, 9:30 am (IV troubles)

Caden had a hard night.  Around midnight the IV they put in his hand went bad.  They weren't able to flush it, and it caused pain to Caden so they had to remove it.  They had difficulty again trying to find a vessel so they called the Transport Team who normally are very good at finding and placing IV lines.  Still no luck.  So, today in rounds they decided they are going to hold off one day (not to place a line) and do everything they can not to replace it at all (YEAH).  Caden is just exhausted from all the pokes throughout the night in addition, now that the central line is gone anytime blood needs to be drawn for labs they have to prick him vs. the central they could just pull blood (no pain) straight from the line.  Caden's chest tubes need to stay in another day too.  We got Caden up to walk and made it to to the playroom.  During the walk he drained another 20cc so they want to wait another day with more walking today to continue to move the fluids out.  It is great to see him up and getting a little stronger each day. Caden made it to the playroom but we had to ride back in the wagon.  I look forward to the day he can walk there and back.  In addition, Dr. Russell changed some of Caden's medications to solid that we can crush and attempt to put into food seeing the liquids are so challenging for him right now.  His heart rate continues to be on the high side around 90-112 at rest but this isn't concerning to them as he is really "dry.    


Thanks again for the prayers……Love Melissa and David

7 comments:

  1. Glad to hear Caden was able to go to the playroom. Hopefully that made him smile a bit while he played. I'm sure the wagon ride was fun for him too. Keep up the good work Caden, and you too Melissa and Dave!

    Thoughts and prayers to you and your family being united soon at home!

    Schuz

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  2. Just catching up... I can't even imagine him walking around with those awful chest tubes. I can't believe he is able to.. I certainly wouldn't. God love him. Im sorry he had a touch night. Hopefully they won't have to get another IV in, that would be so great! I ALWAYS ask for an anesthesiologist automatically but with him being so dry his little veins are even smaller than normal :( Keep the faith.. He is doing so great. Love to all of you... praying for a good day.
    Thanks for the tips on the resource center and the J thingys. I'm sorry you guys are always the ones to go first...
    Teri

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  3. I was so glad to hear Caden is up and walking even if it was only one way. A wagon ride after the play room sounds good to me! Hope he does well on the oral meds and doesn't need any more IV's. Praying for the day his is home playing with Griffin again.
    Love, Aunt Ginny

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  4. I remember all the wagon/wheelchair rides you used to give Allee, David! She always got such pleasure out of them! It's the little things like that, that mean the most! You must know how excIted I was to see that Caden had a therapy dog visit!!! Especially since she was a golden!!! ;). When Caden is ready for a home visit with a golden...I know the perfect one!!!!
    My thoughts and prayers continue to be with you guys! Caden's blog is the first thing I check when I wake up, before I go to work, during work when I have Internet access, in the evening and the last thing I check before I go to bed! Told you I'm addicted! Lol! Who isn't??
    Sending hugs to you all! Just be gentle passing on Caden's!
    Christine Schuzer

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  5. Sad to hear Caden had a rough night but excited to hear he got out of his room to walk a bit! The wagon ride sounds fun as well as the therepy dog visit yesterday. Hoping and praying for a better night for him, think about him all say and am always checking his blog!!! Hope mom and dad are doing well.. Sounds like he is on the road to recovery and with awesome parents I'm sure he will be up and running those walls to the play room in no time. Hugs to you all, looking forward to hearing how he is doing at the next post! Love ya Caden, get better quick we all want to see you and visit!!
    Ms. Sarah

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  6. I've had trouble with IV's and it is tough...those little veins are hard to get into, even on an adult. Maybe they can wait it out and avoid reinserting them. Even the best teams have trouble, as Caden has already experienced. I'm sure once they can plump him up with fluids again he will rebound quickly. Hoping for the best. Hang in there.
    Melanie

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