Fontan Day 3: June 2 3:30 pm

The rollercoaster continues……as other heart families are reading this they know all too well for every two steps forward you take, there seems to be another one back.  Caden had a great morning and although he was still out of it, we thought with time he would get all these pain drugs out of his system.  He threw up (which is normal), and around 2:30pm he started to really not act himself.  Screaming, confused, out of it, not really understanding what was going on.  They ordered a CT scan and to check for stroke, or other complications.  Although Dr. Russell and Dr. Nancy believe what is going on is just adverse reactions of all the meds from the surgeries and post-care.  So, they had to give another dose of versed to take the edge off so he wouldn't pull all his tubes out.  It was taking two people to hold him down and was not fun to watch him like this.  So we wait again….for his eyes to open, or him to be off these nasty meds.   We are just giving Tylenol and Ibuprofen (since early this AM) so we are hoping by Sunday morning he will be himself, back to wanting popsicles, and opening those eyes again.

Sidenote:  The RMH is still wonderful as ever. We don't spend much time there and I am the  only one staying there as hospital sleeping is near impossible for me.  David is sleeping (or trying to) at the hospital each night.  I take the RMH van back to the RMH house each night so I don't have to walk late at night back by myself  and so  David can be with Caden.  One of us are always here with him, and often it take two to of us to comfort him.  This house is the most amazing thing ever!  Although I don't wish anyone to have to be there, I wished more people knew about the kindness they offer so many families.   Especially when you need to wash throw up off your clothes.  It truly is a home away from home.

We pray for these drugs to be completely cleared from his body so he can get back to himself.

Love always - Melissa